Fibrodysplasia Ossificans Progressiva Treatment

Fibrodysplasia Ossificans Progressiva Treatment
Do you still remember the "Mannequin Challenge"? It is a challenge that requires people to dwell like a statue for some time and it became so viral on social media. Apparently, there is a disease that makes a person cannot move. In the medical world, this disease is called fibrodysplasia ossificans progressiva (FOP). Let us find out all about it and the fibrodysplasia ossificans progressiva treatment itself.

What is Fibrodysplasia Ossificans Progressiva (FOP)?
FOP is a condition in which bone grows outside the skeleton. Abnormal bone growth replaces connective tissue, including tendons and ligaments. FOP is caused by a genetic mutation, the ACVR1 gene. This gene is involved in the growth and development of bones that make them mutate into more. This gene can be passed on from parents, but in many cases, FOP can mutate in people who have no history of the disease from their parents.

The Characteristics and symptoms of FOP
One of the signs that can be found is in the big toe disability condition, where the condition of the thumb on both legs is shorter than the proper and opposite direction with the other toes. It is recognized by half of the people who suffer from FOP if they have similar problems with the thumb.

Another sign is the replacement of soft bone tissue. Usually, it is characterized by the growth of tumors in the back, neck, and shoulders. This growth is very torturous and quickly turns into bone. This bone growth lasts throughout life and spreads throughout the body.

How to treat FOP?
Until now, there is no treatment that can slow or stop the progression of this disease. But treatment for certain symptoms can improve the quality of life. Some of them are:
•    Taking corticosteroid drugs or nonsteroidal drugs anti-inflammatory drugs (NSAIDs) alias anti-inflammatory drugs to reduce pain and swelling
•    Wear aids such as braces or special shoes to help walk
•    Doing therapy
Nothing can make new bone growth disappear. Surgery will only produce more bone growth. Avoid doing a biopsy because it can cause bone growth that spread faster to other areas. Intramuscular injection, like most immunizations, it can also cause problems. Dental care should be done carefully by avoiding injections and jaw stretching.

Fall injuries can trigger wider inflammation. Any physical activities that increase the risk of injury should be avoided. FOP is a chronic disease and there is no cure. Treatment only helps reduce symptoms and improve quality of life. The progression rate of this disease is different for everyone and it is difficult to predict. It is important to get the correct diagnosis as soon as possible from the doctor because certain tests and treatment for other conditions can encourage new bone growth.

Finally, that’s all you need to know about fibrodysplasia ossificans progressiva treatment which basically has no cure. FOP is a rare disease, even most people do not know about this disease before. There is no way to prevent it. FOP is not contagious, but it is still important to educate the public about the profound effects of this condition. Research related to this disease continues to be done. 

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